So it is Tuesday January 3rd 2017. Have you made resolutions? I have but I’m thinking I need to adjust them. Obviously I want to make more money. 💰 I want to volunteer more. I want to pay down debt. I want to save money. 🤑 Blah blah blah I’m boring myself. 😂 

I want to hit my goal weight this year. I want to get more sporty. I want to keep kicking butt with WW. I actually have signed myself up for Crossfit and have my 1st Foundations meeting tonight. 💪🏼Holy crap! Not being a weenie is dangerous. 😳 Like I’ve said: If a 400 lb man and an 80 year old lady can do it, why not me?

I want to keep being the best me I can. I’ll continue to read, to practice self care. I’m going to consciously try to be kinder to myself. I’m quite mean to myself. I will fix it!! 😁  I plan on building my blog so I’ll be here to be accountable to all of you! 

Also I have a new job that I love and I’m learning more everyday!!💇🏻💇🏽‍♂️ The people watching isn’t bad either!! 😆

More great news!  I’m super excited about the advances in HD research!!!  Things are looking up fast! First human trials have begun!!! Team Penney will keep on fundraising!! Science is awesome! 🙏🏻🙏🏻🙏🏻 I know I’ll keep praying! 😁

Happy new year!! 

Let’s rock those resolutions!!

I’m flaking all over the place. 

So I’m feeling a ton better overall now that we’ve braved the raging rapids of my medication overhaul. Now it’s a 3 day headache that I’m recovering from. I was feeling like I couldn’t catch a break…..BUT the sun is shining, I have the day off and I feel great!! I intend to make the most of my day!!

I’ve been missing writing but I just haven’t been able to get my shit together enough to do it. In other news I’m still hot on the job hunt. 

My Love has been traveling a lot this past month although I’ve had him home a week straight now. 😍 

I’ve been kicking butt with WW!! ☺️👍🏼😎 Also I’m still slowly working on Couch to 5K 🏃🏽‍♀️😅

Tonight I’m trying out a support group for Huntington’s Disease. 💜 Should be interesting. I feel like maybe I should’ve done that years ago. I’m a self proclaimed CHICKEN!! 🐣🐤🐔🐥 Anyway I’m going to check it out 😳

I’m reading a Tony Robbins book: How to Awaken the Giant Within. I’m loving it!! How did I not read him before? Personal development is something I wish I found sooner than age 32. I could’ve been much further on my journey. ☺️ 🤓

Sooooo all is well in this neck of the woods 💜 Also fun fact: my nieces love FaceTime! And I do too! I’m sure my sister gets driven crazy about it but that’s okay 😉

See you soon peeps!!

I wanna be here for you 💜

So I’ve been thinking about how to put what’s in my head here and do myself and others justice. I’m thinking about how I started this blog to get shit out of my head. I am a VERY unique person with a lot of things going for me. That being said I struggle a lot with a laundry list of things it seems sometimes BUT those things help me connect with my peeps. 

Do you have anxiety? I’m here for you.

Do you have Bipolar Disorder? I’m here for you. 

Do you have depression? I’m here for you.

Do you have migraines? I’m here for you. 

Are you overweight? I’m here for you. 

Are you gene positive for Huntington’s Disease? I’m here for you. 

Are you on disability? I’m here for you. 

Do you see what I’m saying? I’m here for you. 💜💜💜💜

So whether 1 person identifies with this or 1 million…..I’m here for you. Sometimes you just feel like you’re alone and you’re not. I’m here for you. 

I try to do the right thing all the time but you just can’t. I’m doing Weight Watchers to get me a bit lighter. 😉 I log all my food I get excercise in. Then you continue and be patient. I am NOT good at that part. I read an amazing book The Slight Edge by Jeff Olson. The cliff notes version is everyone operates on a baseline. The choices you make in your day either help you or hurt you. You order the salad your lines goes up positively. You order the quarter pounder with cheese your line goes into the negative. Over time your pluses take you sky high and your negatives take you into the ground. Bottom line is keep doing the positive stuff and you’ll get to your goals quicker than if you stray. I try to live by this. But we all stray, for we are human. But I’m here for you. We can’t do it all but we sure try ☺️💜

I love you all and I’m not kidding, I’m here for you. I’ll stay up with you, any time 💜

So, I’m working on some stuff…

I shall begin by saying that consistency is not one of my strong suits. Now that that’s out of the way….I’m working on some stuff.  I’m trying to being a great Dog Mom, which I’m doing well at. I’m trying to be a good girlfriend, which I’m doing well at. I’m trying to be a good person, which I’m doing well at. I’m trying to be a good bestie, which I’m doing well at. Now, here is where the trouble comes in: I’m trying to be good to me…I’m failing MISERABLY!

I can do a lot of things well but wherever and whenever it comes to me I stumble and fail over and over again. Why is that? Wish I knew…..but I’m working on it. I read badass go get it girl books, I have My Love feeding me love every day, my therapist questions me on it, yet I’m beating myself up any chance I get. I’m not acknowledging my value. So how do I fix it? I’m not too sure. Just do better I think…take my meds, sleep well…I do that.  Love myself. I kinda do. I wish I could see me like My Love does!!  He LOVES me! Eat right and exercise…I’ll work on it. What else?! Ummmm  I’m trying to start to get out of my comfort zone a bit. My paperwork is all filled out for my Cosmetology and Esthetics licenses in Michigan. 😃 I want back in the industry and I want to wax. 😃 I know I’m a weirdo!!  I love that shit!! Anyhow I’m going to WW tomorrow and the dentist and My Love comes home from Cali late night!!!  Walk tomorrow!!  Cure HD!!  I’m gonna be a mushy mess, my Dad and my sweet little Grammy gone from it. It’s bullshit honestly. I’m not gonna pull the oh so popular “It’s not fair!” crap. Where does it get you?!  It’s annoying to the listeners. I’m going the crusader route! The closest HD branch is an hour away but I’ll get in there somehow ☺️ Let’s get this shit cured!!

Happy Thursday!!


Here’s my fundraising link:



Damn it, I’m Winning the Day!!!

Good evening ladies and gentlemen!!

I hope everyone had a great holiday.  Our Christmas was great and quiet…does it get any better!?!?  Great food, My Love finally having a few days in a row off in a row.  Beautiful Christmas with Miss Bailey!  Her first Christmas and she loved it because she got cool stuff. 🙂

I went to that Barre class again today…I’m smoked head to toe.  I was violently shaking in all of my muscles by the time class was over and I was doing the MODIFIED exercises.  I can’t wait to get better so I can do the real ones.

I also got going on my calendar, filling it up with doctor appointments, happy hours, coffee talks, lunches, conference calls and webinars.  I love networking!!

I’ve been twitching in my hands and it’s annoying.  All the prescriptions will do that.

I started to find other Huntington’s Disease blogs.  One that I found is NO JOKE!  She’s raw and honest and it scares the crap out of me.  A couple others are more my speed.  Other BiPolar blogs are also scary, well the ones I’ve seen.  I’ll just hang out in my bubble thanks.  I STILL haven’t made it to the BiPolar support group…I’m chicken.

On a side note: My Bruins just beat My Love’s Redwings!!  WHOOP WHOOP!!!

I just slaved over the stove and oven for leftover paleo chicken nuggets and leftover mashed potatoes…YUM!!!

Now to finish off my calendar and chill out with My Love and Miss Bailey!

HAVE A GREAT WEEK!!! ❤ Chrissi

Bruins are on!!!

Welcome back hockey!!!
I am quite pleased to hear hockey at my house. 😃 It’s odd to not have October baseball. Thanks for a great season Boston!! I’m loving the Patriots so far!! Bring in the hockey!!!

I’ve been quite lost today. I’ve been all out of whack with my Bipolar Disorder recently. I feel like I’m on auto-pilot for a blah day. I’m recovering. 😃

Traveling really poops me out! It is compounded by the go go go go theme of our visit…same old same old right!? Family time, wedding, apple picking, bestie night, seeing my Gram at her nursing home and my Dad’s plaque…exhaustion that is both physical and mental.

Something happened before we went to Boston that’s resonated with me. I saw an article on Facebook I think, and it was a woman who blogs for herself about Huntington’s Disease. It helps her to know other people are out there who are feeling what she feels and hurts in very similar ways to her. That’s what I want with my blog. I want people to read my blog and be relieved to know that they’re NOT alone.

I just lost my Dad to HD in January…I know the pain. I’ve been watching my Gram deteriorate for the past almost 20 years. I know what it’s like to see my Dad shake and slur and think I’m my Sister.

I feel like I’ve been fundraising for HD forever. It’s a part of who I am and part of my faith in a cure. I pray for a cure, I pray for treatments, I pray that no one else will have to feel like this anymore.

So I’m broadening my horizons for my blog. Mental health issues and Huntington’s Disease are where I’ll reside. 😃 They go hand in hand a lot for me. I’ve been talking about myself a lot and I apologize, however, it’s good for me to make it known.

I want to be your go to girl to get a hug and an understanding squeeze from. We can be there going through it together. We got this!!

So, are you going through it too?




Cluster _uck…Anxiety through the roof…I NEED some patience

SO just when I think I’m doing well with handling things that are outside my control, God has other plans to test me; I failed.

If you follow me at all you know that my Dad is ill.  It’s not something that will go away, and it’s to the point that we should be looking into somewhere where he can move to, to be cared for.  In the mean time he lives with his siblings.  My sister is running herself ragged with errands and assistance since my uncle needs some surgery on his arm, elbow and wrist.  I’m 2000 miles away and it is a blessing and a curse.  I’d love to take the weight off of my sister…she has 2 little angels and I don’t.  She should be taking care of them, not running back and forth the 45 minute drive from her house to my Dad’s.

I can call them for take out orders and that kind of stuff….other than that, I’m helpless.  It’s just so crazy…I’m 35 and this has been going on for some time now…we’re too young for this…

Usually I can brush it all off, but today I cannot.  Everyone has an off day.  This week has been weird.  Time for some reflection and some practicing patience.  My chest is tight and I can’t seem to catch my breath.  This is exactly what this blog is for…to let me vent over my Subway club and Diet Coke.  Unfortunately I chose to eat over working out…oops.  Maybe I can just double up tomorrow.

I’ve been being mainly good since working with My Love’s sister, our Health Coach.  We go out to eat once a week and we eat clean 70-80% of the time.  I’m okay with that.  I’ve been consistently working out 3 days a week.  I’m still trying to up it to 4 times a week consistently.  This week I will do it!

I will also say that I LOVE this time of year: Red Sox post season, Patriots football…AND Bruins now too!!!  I LOVE IT! I LOVE IT!

Boston Strong!!!  (I ordered a bracelet that has a portion go to the One Fund) 

I got the crap end of a 50/50 shot

So I’m on a rampage and the only safe place for me to blow my top is here. My sister is mad because our family seems to think we have a communicable disease. Sister and I are fundraisers for Huntingtons Disease. It is a terrible terrible disease and we are trying like hell to save our lives. We don’t want anyone to feel the way we do. To have to watch your loved ones literally disappear before your eyes. Shakes like Parkinson’s, memory loss like Alzheimer’s and motor loss like Lou Gehrig.
Our grandmother used to be a nurse and would play Barbies with us. Now she has no idea what’s going on and eats thru a tube.
My Dad used to take us bowling and have lunches of McDonalds on weekends. Now he has had his drivers license taken away due to his deterioration.
It’s AWFUL!!!!!
That being said we walk for Hope for HD every year. For the first time I’m working with the Rocky Mountain Chapter and they’re great!!! I don’t know who will see this but if you can, please, any donation will help. Change in your car seats, money under your mattress ;). All help is greatly greatly appreciated!!
We reached out to our cousins and 2 out of 9 even responded. The other 7 are like statues. If I knew my cousins had genetics for a terminal disease PLEASE BELIEVE that I would move hell and high water to fix it, any way that I could so they wouldn’t hurt. That’s supposed to be what blood does. Not ignore the whole thing, that’s ignorant.
So now we feel like 2nd class citizens. It’s not doing much for family morale that’s for damn sure.
My friends care, My Love cares, My Loves family is better than mine in dealing with all of this.
So now I love his family more than mine, I’m very very thankful to have support, just surprised where the rock stars came from.
I am hurt. I am angry. I am hopeful.
I am raising funds to save our family 🙂